Last week was half-term and we travelled to Lincolnshire to visit Grandma.
We hadn't been since last summer and Adam managed to squeeze into a
travel cot last time. There was no chance he was going to manage that this
visit.
Hubby and I discussed what we could do for sleeping arrangements this
time. Adam has to sleep in the same room as us while we are there so we
can keep him safe. The room isn't large and has a double bed and fitted cupboards
already in there.
We found a blow up bed online that seemed perfect. It had sides so he couldn't
roll out and a blow up mattress. 'Perfect,' we thought.
We bought our chewy son a blow up bed!
Guess what was the first thing he did when we put him to bed? Tried to chew
the sides.
The rest of the week I had to stay with him until he fell asleep and if he woke
in the night one of us had to jump up to stop him chewing.
Lesson learned, Adam and blow up beds are not a good idea.
Not much else new except the referral has been made for a Special Needs
Pushchair. Might be a long wait but at least it is moving forward.
Thursday, 23 February 2017
Wednesday, 8 February 2017
Team Around The Child
It's been longer than planned since my last post, it's been hectic at home.
We are having new flooring put in that will hopefully be safer for Adam and easier to keep clean for me.
Since the last post I went to a Team Around the Child meeting. There were only three other people who could attend besides me but it was a useful meeting.
The best part was getting confirmation that Adam can have another session at preschool from Easter, and a fourth from September. This has been hard to achieve due to the fact that he needs one to one care and we were trying to ensure that he could have the same keyworker that he has at present. They have confirmed that he will have her working with him until he goes to school.
We did discuss the school choices briefly. They seemed confident that there was a realistic option for Adam to attend mainstream school. We will discuss it further in September and an ECHP will be put in place.
I asked at the meeting about the possibility of getting a Special Needs Pushchair as Adam's stimming is an issue and he is able to wrap his feet in the wheels of his, which he does constantly while we are out. They have suggested I contact Wheelchair Services and I have emailed them and am waiting for a response.
My Early Support Practitioner, who chaired the meeting, gave me lots of information about local attractions that Adam and I can go to for free or for a small amount of money. She also gave us details of caravans and beach huts that we can get access to that are adapted to suit our needs. I wish we had heard about them before we booked this years holiday! Would've saved a fortune.
I was offered 4 hours respite a month which was a surprise as I've heard stories from other Autism parents about how they've had to fight for it. I won't be taking advantage of it while he's so young but it's nice to know I have the option in future.
Also since the last post Adam has taken to chewing holes in my sofa. I walked in to find him with a big lump of ripped sofa hanging from his mouth!
I know this blog is new but I've had some positive feedback. Thanks for reading.
We are having new flooring put in that will hopefully be safer for Adam and easier to keep clean for me.
Since the last post I went to a Team Around the Child meeting. There were only three other people who could attend besides me but it was a useful meeting.
The best part was getting confirmation that Adam can have another session at preschool from Easter, and a fourth from September. This has been hard to achieve due to the fact that he needs one to one care and we were trying to ensure that he could have the same keyworker that he has at present. They have confirmed that he will have her working with him until he goes to school.
We did discuss the school choices briefly. They seemed confident that there was a realistic option for Adam to attend mainstream school. We will discuss it further in September and an ECHP will be put in place.
I asked at the meeting about the possibility of getting a Special Needs Pushchair as Adam's stimming is an issue and he is able to wrap his feet in the wheels of his, which he does constantly while we are out. They have suggested I contact Wheelchair Services and I have emailed them and am waiting for a response.
My Early Support Practitioner, who chaired the meeting, gave me lots of information about local attractions that Adam and I can go to for free or for a small amount of money. She also gave us details of caravans and beach huts that we can get access to that are adapted to suit our needs. I wish we had heard about them before we booked this years holiday! Would've saved a fortune.
I was offered 4 hours respite a month which was a surprise as I've heard stories from other Autism parents about how they've had to fight for it. I won't be taking advantage of it while he's so young but it's nice to know I have the option in future.
Also since the last post Adam has taken to chewing holes in my sofa. I walked in to find him with a big lump of ripped sofa hanging from his mouth!
I know this blog is new but I've had some positive feedback. Thanks for reading.
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